It seems almost surreal that one week ago we were sitting on the beach listening to the waves crash, and today we are watching husband quickly recover from his posterior fossa decompression surgery. So much has transpired over the past 7 days it is really hard to fathom everything that we’ve been through. Sometimes I still find myself overwhelmed by God’s grace that got us through all of this. We were so worried, so nervous, so scared, yet Will has come through everything with strength and dignity about it all. Sure, he gets a little depressed and irritated with being laid up sometimes, but he comes through it within minutes and is back to himself. He’s on high dosages of medications that he takes around the clock. Lori and I are here to remind and administer the medications just about every two hours. While I am working, Lori is on the day time shift, and then I take the night time route. I set the alarm clock every two hours while we “sleep” to remind us to get up and take his next dose. No complaints from the patient thus far.
We were given many gifts to get us through these trying times. Lori handmade me a necklace with special stones that aid in healing and processing of trying times, she also made herself and Will some Chiari/Syringomyelia awareness bracelets/necklaces that have tiny amethyst stones and tiny skulls on them with purple and turquoise ribbons. Mom sent me a silk scarf bordered in bright yellow to remind me of the strength of the mustard seed. The numbers of cards, flowers, balloons, gifts, and neighbors dropping by with food is something I still find hard to process. I know Will really can’t fully grasp it all himself. However, we feel the love from our large circle of supporters and thank you all for everything you’ve done and continue to do.
Each day gets easier, and the gravity of the entire situation seems to begin to lift. We just cannot reiterate how thankful we are that the condition was caught so early on, and that Will has not endured any permanent damage. So many others with these conditions are not so lucky, and we just hope that Will’s story will raise awareness for someone with these symptoms to get them checked out so they can be saved from the horribly crippling pain that these conditions can cause.
You must be logged in to post a comment.