So just got the call back from my PCP. She spoke with the PA (and neurosurgeon via the PA). At this point the neurosurgeon believes doing a head wrap would be pointless. He told the doctor that I need surgery to repair the CSF leak. Wonderful. She specifically asked if there was any danger in waiting to see what happens (such as risk of infection, etc.). He said there is not but he believes this will not be corrected without surgery and the putting it off increases the chances of my symptoms coming back and the headaches returning. The good news is she said not to worry about the spinal tap because the results are normal for post-op patients. Sooooo she is giving me the referal to UNC to get a second opinion but based on her conversation with the neurosurgeon’s office it appears there is no alternative to surgery at this point because they have tried what they could and it didn’t work. What a bummer!
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