03
Jun

So I am back in good spirits after reading some of the stories at:

http://www.pressenter.com/~chip/success.htm

There are several success stories where people say that they had CSF leaks after the surgery and they healed after several months.  I have hope again!

03
Jun

will and lori are like two peas in a pod when it comes to their love affair with crab legs.  i think if both of them had to select one food item to be their last meal, they would very likely both choose crab legs as their option.  a few years ago we all went to myrtle beach and granny took us all out to an all you can eat seafood buffet.  lori and will battled it out to see who could consume the most crab legs.  i have to admit it was really a tie, but after hours of sitting with them the rest of us got tired and forced them to call off the battle.

will’s mom got him some king crab legs when she was in town.  this week we decided to thaw them out and cook them on the grill.  (we have a rule that you do not cook or store cooked crablegs in our home’s fridge – long story that dates back to 2004.)  the grilled crab legs turned out pretty good on the grill and will enjoyed cracking and dipping them in butter for his dinner.  we attempted to roast some corn on the grill as well, but we’ve both determined that either this was a bad batch, or corn is not yet ready for the pickin’ just yet.

also included are photos of will’s scar healing progress and his humpty bumpty lumpty lump from day 35.

03
Jun

So just got the call back from my PCP.  She spoke with the PA (and neurosurgeon via the PA).  At this point the neurosurgeon believes doing a head wrap would be pointless.  He told the doctor that I need surgery to repair the CSF leak.  Wonderful.  She specifically asked if there was any danger in waiting to see what happens (such as risk of infection, etc.).  He said there is not but he believes this will not be corrected without surgery and the putting it off increases the chances of my symptoms coming back and the headaches returning.  The good news is she said not to worry about the spinal tap because the results are normal for post-op patients. Sooooo she is giving me the referal to UNC to get a second opinion but based on her conversation with the neurosurgeon’s office it appears there is no alternative to surgery at this point because they have tried what they could and it didn’t work.  What a bummer!